The Bloggers With The Most To Say
living with endometriosis
I've recently been (unofficially) diagnosed with endometriosis. (You don't get an official diagnosis without surgery, something I can't afford right now because I'm uninsured.)
It's extremely painful... takes me away from work and social life. And knowing that even with surgery it's not going to just go away... it's been hard. It's basically counting down from one painful cycle to another. Without pain medications, I pretty don't want to be conscious once I have "an episode"... I'm on birth control to help control my hormone levels (since estrogen makes this all worse), and I've got some pain killers... ... and that's about it.
It's been hard. Endometriosis isn't uncommon, but there's still not a whole lot known about it. And the fact that there's no cure... I'm coping. But it's not easy. It doesn't feel like many understand what I'm going through.
So basically I'm trying to reach out and find others who are dealing with this -- to form a little support network. If you don't want to share here, email me: erini@20sb.net
It's extremely painful... takes me away from work and social life. And knowing that even with surgery it's not going to just go away... it's been hard. It's basically counting down from one painful cycle to another. Without pain medications, I pretty don't want to be conscious once I have "an episode"... I'm on birth control to help control my hormone levels (since estrogen makes this all worse), and I've got some pain killers... ... and that's about it.
It's been hard. Endometriosis isn't uncommon, but there's still not a whole lot known about it. And the fact that there's no cure... I'm coping. But it's not easy. It doesn't feel like many understand what I'm going through.
So basically I'm trying to reach out and find others who are dealing with this -- to form a little support network. If you don't want to share here, email me: erini@20sb.net
Tags: endometriosis, health, women's
Replies to This Discussion
-
Permalink Reply by Erini CS on -
I'm also trying to set up a group as well -- apparently I don't have those admin privileges to approve groups any more, so I've got to wait for someone else on the 20sb team to approve it... once it is, I'll post the link here.
-
Permalink Reply by Christina Mendez on -
I have PCOS (poly-cystic ovarian syndrome) and it's fairly common and pretty painful. So I can semi-relate if you ever wanna chat :/ let me know
www.missysalsa.blogspot.com
-
Permalink Reply by Plum on -
As soon as my husband's insurance kicks in at his new job, I'm going to the OBGYN. I've always had painful cramps, to the point where I lay in bed for a few hours and just desperately try to not be conscious, but it's gotten worse. Last month I was just delirious with pain and vomiting. It was ridiculous.
So, yeah, I feel your pain. Literally.
Though I just tell my husband it's his fault and my body is punishing me for not yet producing babies.
-
Permalink Reply by Erin on -
Endo blows. The only way to "treat" it truly is with surgery, which I had last September. Still, it'll just come back. Ironically, pregnancy can also clear it up...but it can impede your ability to get pregnant.
-
Permalink Reply by Sarah on -
I've never been officially diagnosed either, just prescribed every pain medication available. I don't really want to go into details here, but I'll just say it gets ugly. There's a point almost every time when I'm absolutely certain I will actually die. I actually found birth control pills extremely helpful, but only until I wound up with a massive blood clot and pulmonary embolism. I was hoping I would grow out of it, but after ten years I may have to give surgery a shot.
So I can definitely relate!
Welcome to 20 Something Bloggers!
© 2012 Created by Lisa.
